59 pages • 1 hour read
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My Sister’s Keeper is about 13-year-old Anna Fitzgerald’s fight for the right to decide for herself if her body should be used to heal her sister, Kate, who suffers from acute promyelocytic leukemia (APL). Jodi Picoult writes a majority of the novel from Anna’s perspective, exploring the ways in which the circumstances of her birth and frequent medical donations have forever altered her childhood. At the same time, Picoult inserts chapters from the perspectives of others, such as Anna and Kate’s mother, Sara, whose grief in dealing with Kate’s diagnosis and treatments are shown firsthand. The novel’s structure—caught between alternating, almost competing, styles—allows for a more thorough exploration of bodily autonomy and choice.
Sara is presented as a mother who is determined to save her elder daughter at all costs. She is single-minded to a fault; while this mindset has contributed to Kate’s survival, it also causes Sara to lash out at her younger daughter when she files a petition for medical emancipation. Sara believes Kate will survive as long as the family doesn’t give up. Anna, on the other hand, requests the right to make her own medical choices. Since the moment she was born, Anna has been pushed to donate blood and bone marrow to Kate without explicit permission. The way Anna presents her history of donations, it is clear that her parents have always weighed Kate’s potential death over Anna’s physical and mental health. While Anna loves her sister (and mostly pursues a petition to honor Kate’s desire to die), she genuinely desires a say in her situation.
It is clear that Anna and Kate’s parents are in an impossible situation. As Sara says in the novel, “that building was on fire, one of my children was in it—and the only opportunity to save her was to send in my other child, because she was the only one who knew the way” (406). However, it is also clear that Sara has been so focused on Kate’s health that she is unaware of how mature yet burdened Anna is by her role as a savior sibling. Picoult waits until the end of the novel to reveal that Anna has chosen to fight for medical emancipation not because she no longer wants to donate to Kate, but because she believes it is her role to give Kate what she wants—and Kate no longer desires treatment. Judge DeSalvo’s decision to grant Anna medical emancipation (with Campbell as her medical power of attorney) doesn’t necessarily solve the Fitzgeralds’ moral dilemma: It simply takes decision-making out of Sara and Brian’s hands, and allows Anna to feel as though she has more control over her own body.
In the end, the answer as to whether or not it is morally or ethically right to use one child to help another is not given—it is simply explored through different perspectives. This is a topic that will continue to be debated among the general public and ethicists alike. Picoult instead “solves” her dilemma with an act of nature, a slippery road that leads to an inevitable conclusion—still, a conclusion that forces Sara and Brian to have the final say in their neglected daughter’s death by taking her off life support. In the novel, Sara proves correct in her prediction, as Kate’s kidney transplant from Anna does result in an eight-year remission. However, there is no true winner, as there rarely is in real life when it comes to difficult decisions. The Fitzgeralds mourn Anna, with Sara and Kate in particular denied chances at proper reconciliation, but they do the only thing they can and continue living.
When Jesse and Kate were younger, they were the shared focus of their doting parents. However, when Kate is diagnosed with APL, Sara and Brian’s attention shifts. As Kate suffers her first rounds of chemotherapy, attention understandably shifts to her. Four-year-old Jesse is left with Sara’s sister and cared for properly, but for more than a year, his parents are so distracted by Kate’s illness and Anna’s birth that they neglect him. Life returns to normal for five years, but when Kate’s health falters, Jesse once again slips through the cracks.
At one point, Jesse describes a Christmas when he was 11 and his parents were distracted by Kate receiving granulocytes from Anna to help her fight an infection. Sara and Brian forgot they were supposed to take Jesse to get a Christmas tree and ended up buying his presents from the hospital gift shop. This pattern of neglect led to Jesse feeling invisible within the family. For this reason, he acts out and sets fires to get his father’s attention. However, Jesse also does so to feel in control, to work through his guilt and grief at being unable to help Kate.
Anna also feels invisible, as she is only ever deemed important in regard to Kate’s illness. Sara prioritizes Kate and guilts Anna into making donations with the possibility of Kate’s death. There are several moments in which Sara brushes off Anna’s fear of needles, aversion to medical staff, and discomfort from medical procedures. After Anna’s bone marrow aspiration, Sara is reluctant to leave Kate’s side to comfort Anna while she suffers from post-procedure pain. Despite claiming to love both daughters, Sara makes it clear that Kate’s suffering is more important to her than Anna’s—exacerbated by her initial promise to save Kate at all costs.
Yet, Jesse and Anna are not the only ones who feel invisible. Sara’s hyperfocus on Kate’s disease causes her to disregard Kate’s feelings regarding her quality of life. While Sara fights ferociously to save Kate, she doesn’t see Kate’s insecurity over her hair loss, rashes, and procedure-related scars. Sara doesn’t see how tired Kate is, having to fight day after day. In the end, it is only Anna who listens when Kate expresses a desire to stop fighting. This, too, is a kind of neglect. Even though Sara’s persistence achieves her desired result (Kate receiving Anna’s kidney and ultimately living), it bears the question of who should decide when enough is enough. If Anna hadn’t died, even she would have likely agreed with her mother and donated a kidney despite Kate’s wishes, as she expresses this to Campbell before their accident. While Sara and Anna both act out of love, they both demonstrate how care for another can spiral out of control (Sara) and hurt others (Jesse, Kate, and Anna).
Sara’s hyperfocus on Kate also forces her husband Brian into a position where he has to choose between his wife and his children. Brian initially agrees with Anna that she deserves the right to her own body, but his love for Sara (and newfound belief in Kate’s survival) causes him to turn against Anna in court. At the same time, Brian becomes aware of his failures as a father when confronted with evidence that his son Jesse has been committing arson. He and Sara are in a difficult position, focusing on Kate in order to cope with the possibility of her death. However, this mindset doesn’t excuse their neglect as much as it explains their neglect—with the novel’s conclusion robbing them of their neglected daughter forever.
Control is at the core of the novel because Anna is seeking control over her own body through medical emancipation. However, Anna’s motive for seeking this petition isn’t as much about control as it is about fulfilling her purpose in life—giving Kate what she needs. While she does desire some bodily autonomy, she is mostly acting out of love for her sister (which, in itself, speaks to her parents’ hold over her, as her level of selflessness has been ingrained in her over 13 years). Yet, there are several characters whose desire for control is more apparent.
As a mother and a determined person, Sara needs to control Kate’s illness. Sara promised herself and Brian that she would not allow Kate to die when she was first diagnosed with APL. To fulfil this promise, Sara needs to control the disease and control the treatments used to put it in remission. For this reason, she visits a geneticist and arranges to become pregnant with an allogeneic donor for Kate. Sara then uses the possibility of Kate’s death to guilt Anna into making medical donations. Not once does Sara step back and ask Anna or Kate if they truly desire treatment. However, control over her daughters allows her to feel in control of an otherwise uncontrollable situation.
The Fitzgeralds’ eldest, Jesse, also desires control. He feels he has no control within his family, no control over whether or not Kate survives, and no control over the fleeting attention he gets from his parents. For this reason, Jesse begins lighting fires. The fires are something Jesse can control. He can choose when, where, and how these fires begin, and can watch them burn. This is Jesse’s way of getting his father’s attention—and working through his inability to help Kate as a non-genetic match, yet another uncontrollable situation.
Kate herself also desires control. When Sara tells Kate and Anna that Kate’s kidney failure has progressed to the point where she will likely need a transplant, Kate is overwhelmed with the possibility of going through another procedure. Kate has already been through a great deal of pain, especially for someone her age. She doesn’t want the transplant, but knows her mother will not listen to her plea. For this reason, Kate takes control by convincing Anna to find a way to stop being her donor. Kate needs to control something in her life, even if it’s her own death.
Anna’s lawyer Campbell, too, desires control. Campbell has a seizure disorder with no known cause and no known cure. When he has a seizure, he loses complete control of his own body. The only control he is able to achieve is through the help of his service dog, Judge, and fabricated stories about his disorder. It is this need for control over his own body that compels Campbell to take Anna’s case, as he sympathizes with her plight.
While most of the characters desire control, it can be argued that none of them achieve it through their original means. Sara can never truly control Kate’s illness, despite it being in remission at the end of the novel. Jesse’s fires only give him a fleeting sense of control, but eventually garner his father’s attention. Kate doesn’t get to choose whether or not she receives Anna’s kidney, but the result of the transplant gives her renewed health that allows her more freedom. Campbell continues to have seizures, but the revelation of his disorder wins him the heart of Julia, the woman he loves. In the end, no one truly gets what they want, but they get an outcome that allows them a path forward.
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By Jodi Picoult